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Behavioural Therapy
from Hell
by Adam James |
Debbie
Holden was 16 when she first started to slip into the lonely, nightmare
world of anorexia.
She won a competition with school friends over who could lose the most
weight.
And it was from this ominous beginning that the eight stone teenager
became trapped in a cycle of binging, vomiting and laxative abuse.
Over the months and years her weight dropped steadily.
So that by the time she was 20 Holden weighed just five-and-a-half stone,
and doctors feared she was so frail she would die.
So they sectioned her and admitted her to North Manchester General Hospital.
This should have marked a turning point in Holdens life, when
the staff of Ward G3 would support Holden in overcoming her eating disorder.
Instead Holden describes it as when her period of hell began.
She was heavily sedated, fitted with a nasal drip and confined to one
room.
Psychiatrists then initiated a behavioural therapy programme,
based on the principle that if anorexic patients are rewarded
after gaining weight they would be more willing to eat voluntarily.
Holden remembers with horror: Fifteen nurses entered my room.
Without speaking to me they removed every possession I had, including
Get Well cards, clothes, and cigarettes.
They just marched off with everything. My doctor then came in
and asked me what I wanted. I said I wanted to be out of the room and
with my mum.
Allowed just a nightie to wear Holden was told that as her weight increased
she would be granted privileges, including use of a telephone
and television, clothes, baths, make-up, visitors and access to the
wards toilet.
She was prohibited from leaving the room she came to call her glass
cage, and was denied reading or writing materials until weight
was gained.
I remember one day screaming and begging my dad who came to visit
not to leave me, recalls Holden who objected to being force fed
and saw the treatment as a ruthless system of deprivation and punishment.
I kept pulling out the drip because sedatives were being put through
it into my stomach. Yards and yards of the plastic tubing used to come
out. I was so heavily medicated I could open my mouth but could not
speak. I was a vegetable.
While doctors assured confused Holden the treatment was for her own
good, they warned that if she continued to rip out the drip another
would be inserted into a vein in her neck.
Holden saw this treatment which went on for five weeks as psychological
torture.
And as the liquid food dripped into Holdens stomach her weight
ballooned by three stone.
I felt I was raped because the whole shape of my body was changed
so crudely without my permission, says Holden.
Holden was treated in 1983. But force-feeding and isolating anorexics
while employing behavioural techniques is still practised today.
It is often the under resourced busy hospitals which tend to use
this stricter form of behavioural therapy, says Dr Jill Welbourn,
who headed a Bristol eating disorder team for 25 years.
It may be used in the kind of hospital where there are perhaps
just three nurses for 26 patients. Although strict behavioural therapy
is less popular now it can depend on the luck of the draw as to where
you live. There are whole areas in the country which are total deserts
in term of more contemporary less confrontational approaches to anorexia.
Holden believes the humiliation she suffered damaged her so much it
compounded her anorexia and distress.
Even now she fears confined spaces.
I was put in that hospital room not for five weeks but for 10
years. I think it was unnecessarily cruel, asserts Holden from
her terraced home in Middleton, Manchester.
You can not expect anyone to go through something like that and
for it to have no effect. If it was about saving my life then surely
I should feel happy about it.
It was only in 1993 after becoming pregnant that Holden found the inner
resolve to beat her eating problems.
Against medical advice she came off all her medication as she believed
it would damage the baby she was carrying.
I knew that I had to get well for my daughter. I had a responsibility
towards another life and could not afford to be ill. Whereas previously
I would vomit after eating, I learnt to force myself to swallow the
food which I had vomited up in to my mouth.
By 1995, after Holden had returned to a healthy weight of nine stone,
she sought legal redress for her glass cage torment.
Holden was encouraged when granted legal aid to pursue a case of medical
negligence against North Manchester Health Authority.
As part of the preliminaries, Holdens medical notes were sent
to the distinguished Dr Arthur Crisp, author of Anorexia Nervosa - Let
me be.
He supported Holdens version of events, writing that her therapy
contained an unacceptable punitive element which may have led
to specific abuse on some occasions... Ms Holdens treatment is
more likely than not to have caused her damage.
In addition a psychotherapist concluded the humiliation Holden experienced
in the hands of the hospital should be understood as though it
were a Post-Traumatic Stress Disorder.
But despite such condemnations, Holden learnt earlier this year that
she would probably lose a medical negligence claim.
Her legal counsel concluded the authority would be able to demonstrate
with some ease that other doctors would endorse Holdens
treatment.
It also believed the authority would be able to trace doctors who at
the time followed similar regimes on anorexia patients.
In effect this judgement put into doubt whether anorexic patients have
legal come back against experiencing trauma as a result of compulsory
treatment.
Terry Simpson, of mental health user group The UK Advocacy Network says:
I think this represents a sad indictment of the mental health
service. Research into anorexia has never looked at how compulsory treatment
effects patients.
Compulsory treatment often leads to further problems. It can be
very humiliating and stigmatising for a patient and can take many years
to work out how such treatment has damaged you.
While Dr Welbourn agrees that many anorexia patients feel aggrieved
after compulsory treatment, she believes desperate measures are necessary
to save lives.
She says she has known more anorexia patients starve to death than to
complain afterwards.
Compare it with someone who suffers a cardiac arrest, she
argues.
A doctor might shove their hand into a persons chest and
squeeze the heart to get it going because the patient is about to die.
Now that could be an assault.
Sectioning does save lives and some of my patients have been grateful
for being saved. But for others compulsory treatment has become their
recurring nightmare. One does not know at the beginning how it is going
to go.
Dr Ross Connan of the eating disorder unit at The Bethlem Royal and
Maudsley Hospital believes most professionals recognise the distress
caused by compulsory feeding.
She says the pros and cons of such practice have to be weighed up before
going ahead with it.
You can spend the whole day arguing with a patient on what they
should eat. But there comes a point when a patient needs to be fed.
she concedes.
And often feeding works best when external control is enforced.
Many severely ill patients find making the choice to feed themselves
very frightening.
Finally she acknowledges gloomily: Patients have and will continue
to feel they have barbaric experiences.
No body likes to be treated against their will, and inevitably
it will leave people feeling trapped and helpless.
Meanwhile Holden, now 37 and with no outward sign of her anorexia years,
believes her turbulent family relationships lay at the root of her eating
problems and that doctors failed to talk these issues through with her.
Is there really a doctor out there who would stand up in court
and support the hideous treatment I went through. Doctors without a
proper understanding of anorexia should learn that they can make it
worst.
A North Manchester General Hospital psychiatrist who knew Holdens
case chose not to comment.
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